Australian Organ Donor Register




Welcome to The Cain Foundation for
Branchio-Oto-Renal Syndrome

This website is a labor of love dedicated to our first Son, Harrison Cain, who was diagnosed with
Branchio-Oto-Renal Syndrome shortly after birth in 2003.

We had found after diagnosis that there was very little information regarding the condition Branchio-Oto-Renal Syndrome, so our hope of creating this website was that we could start a Forum to help educate ourselves and others by sharing real life experiences and information gathered by all those that have been touched by this rare condition.
The Cain Foundation Forum which was extremely successful was devastatingly hacked some time ago now and I was so upset to have lost all of our stories, comments and journeys that we had shared together. It was a place where many came to ask questions and to meet others who were affected by BOR, way before there was any other information on the web. Unfortunately to create a new look secure Forum we had to shut down the old one :(
I'd love for you all to Re Register and log back into the new look secure Forum so that we can all stay in contact. 

This website is a work in progress and will be maintained in our spare time. This site is about our experiences, our opinions and our interpretation of the facts that we both hear and have read about.

Please email me your stories and any information and links that might be useful and I will post them on this website. Feel free to sign in our Forum, LIKE us on Facebook by clicking the Facebook sign in the top right hand corner of this page and contact us anytime. Together we can get through this.

Fiona Cain
Founder / Director of The Cain Foundation
Loving Mother




We are Registered with the Australian Business Register as a HEALTH PROMOTION CHARITY and are endorsed for charity tax concessions. The information provided herein should not be used for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Copyright © 2005 All Rights Reserved.


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