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  The Cain Foundation Forum  Discussion Topi...  General  New Research Projects happening for BOR.....
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New Post 11/20/2012 3:36 PM
  Harrison09
24 posts
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New Research Projects happening for BOR..... 

Has anyone heard of any new research projects occurring re BOR? I know there were 2 happening a couple of years back in Omaha. 

Any news........

 
New Post 11/20/2012 4:13 PM
  sparklybunny21
5 posts
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Re: New Research Projects happening for BOR..... 

Not sure if this is really is what you're looking for but there is a doc named Patrick Brophy and he's in the middle of a study about BRA(Potter's syndrome..which I just so happened to have an older brother pass away from this as a newborn and then I had a daughter with BOR...) and he's interested in families that have had a loss with BRA and have another child with BOR. Which I have talked to one person and I got her in touch with him b/c she is what he was looking for, for part of the study. I've talked with him several times while we were waiting to find out Isa's genetics and kidney results. He is a super nice guy and a GREAT doctor(and he just so happend to work at Mott's and just moved a way like 2yrs ago)

here is his website for the research stuff he's working on...it doesn't list the BOR but he's a weath of knowledge b/c he's a kidney doc. :)

http://www.kidneygenes.com/potter.htm

 
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