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I do apologize for those of you who have shared your many stories & experiences on there, I was extremely disappointed to have lost them. I hope that you will all start communicating again soon.
The Forum is there so we can all learn from one another & share.
Regards, Fiona Cain


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  The Cain Foundation Forum  Discussion Topi...  General  Harrison's Update.
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New Post 2/8/2013 1:19 PM
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Harrison's Update. 

 Harri had his 5 month check up last week. All is going well. His diet is playing is becoming a slight issue these days. It is showing too much phosphate in his system. For this he has to take Caltrate tablets in which he has been on before but now he is having these 3 times a day. He is also still on Ramipril twice a day. I believe the Ramipril is working with his kidneys. He is having another hearing test in a fortnight as its been a couple of years now. So will see how that pans out. Otherwise he is doing well. He is in year 4 at svhool this year. He still plays soccer, and now basketball along with oztag. He is always very busy. 

Love to hear some other family updates, where have you all gone??? Please send me a post.

best Wishes


New Post 3/17/2013 8:24 PM
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Re: Harrison's Update. 

 Hi Fiona,

That is great to hear your son is doing so well. My daughter who is 3 has BOR syndrome. However her kidneys are not effected, she has a bilateral mild to moderate hearing loss for which she wears hearing aids. We found out towards the end of last year that neither myself or her father carry the deletion of the gene so her case is spontaneous. 

Will you be holding any fundraisers this year? I would live to get involved and help out.


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  The Cain Foundation Forum  Discussion Topi...  General  Harrison's Update.



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