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  The Cain Foundation Forum  Discussion Topi...  General  My 2 month old has ear pits
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New Post 1/21/2014 2:10 AM
  Annemh
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My 2 month old has ear pits 

 Hello, my 2 month old son was born with ear pits in both ears.  We were told in the hospital about them and told not to worry bc he had passed all the hearing tests.  And that was that.  Once we got home I did more research on them and then brought it up to his pediatrician.  She said that as long as they don't leak anything or get swollen that I shouldn't worry.  She also told me that they "used to" relate ear pits to kidney function but not anymore.  Obviously that's not true, it still is very much linked to kidney function....I don't know why she told me that, maybe to calm me down so I wouldn't worry more.  So anyways, I've done a lot of research on ear pits and the other problems that can accompany them and I'm wanting some advice.  Should I push this issue further?  The only abnormality he has ( that we know of) are his ear pits...they seem very shallow and small.  He also was born with a Sacral Dimple on his lower back but it is definitely closed....I've looked up info to see if there was a link between sacral dimples and ear pits...I couldn't find one, other than the fact that they are both congenital abnormalities. Sacral dimples are a midline abnormality, 

 

Anyways, any info or advice would be appreciated.  I figure I will push for another hearing test maybe when he is 6 months or so....but should I push kidney screening and other tests just bc he has ear pits? 

 

Thanks,

Anne

 
New Post 1/22/2014 7:48 AM
  ashleyka
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Re: My 2 month old has ear pits 
Modified By ashleyka  on 1/21/2014 5:06:15 PM)

Many medical professionals are misinformed about, or unaware of, BOR Syndrome. I have it, as do my two daughters, and I've had to explain our condition many times. We all have ear pits and a branchial cyst (in the neck). Me and one of my daughters are hard-of-hearing. My other daughter has passed her hearing tests so far, but has kidney problems.

Ear pits (preauricular pits) are found in people with hearing loss and with normal hearing. Ear pits can exist in people with no other abnormalities in their body. However, the percentage of the hard-of-hearing population who have ear pits (or other external ear malformation) is higher than the percentage of the normal-hearing population that have ear pits. The hearing loss is often from birth, but can also have a later onset. I would definitely get another hearing test in a few months, and have your son’s ears tested regularly throughout childhood. My daughters were both born with (closed) sacral dimples. Our neonatologist tried to find a link between that and the ear pits, but didn’t come up with anything conclusive either.

This article/study I found may be helpful (It is from 2001, but I don't really think that changes their findings):  http://pediatrics.aappublications.org/content/108/2/e32.short  

 If you’re really worried about it, you could go ahead and get his kidneys checked out, just to be sure. Kidneys can be “checked out” via ultrasound and/or blood test (Renal Function Panel). There are also other screenings your doctor may request. Or you can talk to a doctor and just watch for signs of kidney disease, such as high blood pressure or low urine production, before getting his kidneys checked out. However, kidney disease can be a rather “silent” disease, meaning there may not be any symptoms until the disease is at its worst. Either way, I’d talk to a doctor and discuss your concerns and the research you’ve done.

I hope this helps. He very well may just have ear pits and that’s it. I just want to give you some kind of input here. At the very least, I’d keep regular hearing test appointments for your son. As far as kidneys, whatever you think is best with the information you have. I would get them tested for my kids because we know some of the family has BOR syndrome. It’s hard to say what I’d do if I were in your exact situation.

I found that the Cain Foundation’s Facebook page seems more active and updated than this website. You might find some more help there. Good luck!

 

 
New Post 5/4/2015 11:26 PM
  csramos
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Re: My 2 month old has ear pits 
Hello Anne, My 2 year old daughter also has shallow era pits on both ears and sacral dimple (closed), close to the anus. I am also looking for information that relate these two findings. She did hearing testing when she was born and it was normal. She has normal cognition and motor skills. About kidney function, I have never evaluated that, but she goes to the bathroom frequently. Do you have any new information about that? Please, help me! I am schedulling a visit to a neurologist and also a geneticist. Thanks, Camila.
 
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