The Cain Foundation Forum
This is a new look SECURE Forum that will have NO junk advertising, hackers etc.
I do apologize for those of you who have shared your many stories & experiences on there, I was extremely disappointed to have lost them. I hope that you will all start communicating again soon.
The Forum is there so we can all learn from one another & share.
Regards, Fiona Cain


You MUST be registered to use the Forum.
You MUST login to use the Forum.


  The Cain Foundation Forum  Discussion Topi...  Personal Storie...  Finally found support
Previous Previous
Next Next
New Post 3/20/2014 5:18 AM
1 posts
No Ranking

Finally found support 

Hi. My husband has BOR since birth although it was not discovered until he was about 2 years old. Our baby daughter was born healthy however when my husband held her for the first time he recognised the physyical symptoms which the doctors were fascinated with leaving us feeling like she was being used as a test subject. We are now under the care of the paediatricians and genetecists and she is due to have several operations next year to correct the problems. This discovery has affected my husband especially since her hearing has deteriorated since birth (she is now 13 months). It is lovely to finally find people that understand our worries and anxiety about children with BOR. As a non sufferer but a parent of 2 children (x1 stepson)with BOR Iam looking forward to finding out more.

New Post 6/1/2017 10:27 AM
6 posts
No Ranking

Re: Finally found support 

 Hi. It is a relief to find this group and share our knowledge. I hope the surgeries went well and you have found ways to use technology and sign language to help with communication. I learned ASL 20 years before finding out I had BOR. 

Would you like to share the symptoms your daughter has and how it's going since your last post?

Previous Previous
Next Next
  The Cain Foundation Forum  Discussion Topi...  Personal Storie...  Finally found support



We are Registered with the Australian Business Register as a HEALTH PROMOTION CHARITY and are endorsed for charity tax concessions. The information provided herein should not be used for the diagnosis or treatment of any medical condition. A licensed physician should be consulted for diagnosis and treatment of any and all medical conditions. Copyright © 2005 All Rights Reserved.


Website Design by D2 Design | Copyright © The Cain Foundation. ABN 14 437 033 250