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  The Cain Foundation Forum  Discussion Topi...  Personal Storie...  Never knew what was wrong with me.
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New Post 8/9/2013 2:42 PM
Informative
  jasonod1
1 posts
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Never knew what was wrong with me. 

 Hi all,

I was born BOR and from a very age it started to cause problems for me. My Dad and GrandDad had the same as me but no knew what it was. I developed cysts in my neck but the problem with this was that the cysts produced a type of discharge that could only be released into to my body. When I was 3 I had to have these cysts removed as I could not eat with the very unpleasant taste of this discharge. After it was removed I was fine. I still have the preauricular pits in my ears. These pits give a very smell discharge and I can only guess that discharge is similar to what I had in my neck. I never knew what was wrong with me until last year. I am wondering if anyone has had the same issues as me? Also I have not had any issues with my kidneys but is there anything I should look for?

 
New Post 6/1/2017 10:31 AM
  Mamamar
6 posts
No Ranking


Re: Never knew what was wrong with me. 

 You might want to get a blood test to check your kidneys, they can test for Creatinine, GFR and BUN. Even if you have no issues now, it could be helpful to know your baseline. 

Did your neck cysts open to the outside of your neck? The one I have is not visible to the eye, but it does have a tiny unnoticable discharge only when I sweat. 

 
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