I wonder what the doctors mean by a planned pregnancy. Do they see risks for you, or for baby, or both? I had a baby last year and she did get my BOR. She has the ear pits, some hearing loss, neck cysts and so far kidneys look alright. She was gestationally small and breech but I'm not aware if that has any relation to BOR.
I would like to know more about our family's branchial cleft cysts. Are they fully open or closed? Me and my daughter have one of each.
Also, has anyone in your family with the cyst ever experienced any neck stiffness, torticollis or issues with the cyst and the STM muscle (sternocleidomastoid) interracting?