Branchio-Oto-Renal Syndrome - The Cain Foundation

The CAIN FOUNDATION, a voluntary health organization seeks to develop and rapidly apply the most promising research to treat and cure those with Branchio - oto - renal Syndrome, educate both the Public and Medical Practitioners and to improve the health and well-being of individuals and families affected by this syndrome.

GOALS OF THE FOUNDATION
- Supporting Research and Research Training. Introducing BOR Research into Australia.
- Expanding Patient Services and Community Resources.
- Educating the Public and Medical Practitioners.
- Fund Raising.

THE PROBLEM WITH BOR SYNDROME
- 93% of individuals with BOR Syndrome will suffer hearing loss.
- 67% of individuals with BOR syndrome will suffer from chronic renal failure and need an artificial kidney machine (dialysis) or a kidney transplant to stay alive.
- BOR Syndrome is an autosomal genetic disorder with many malformations in differing degrees.

PUBLIC EDUCATION
- Educating the public on the causes and the effects of BOR Syndrome.
- Web site.
- Fact sheet available to the public.
- Physicians File.

PROFESSIONAL EDUCATION
- Educating Doctors on the causes and effects of BOR Syndrome.
- Web page that includes online discussion groups for Doctors who have treated patients with BOR syndrome, patients and internet based continuing education.
- Physicians File.
- Fact Sheets.

PATIENT & COMMUNITY SERVICES
- Support program for BOR syndrome patients and their families.
- Financial aid for patients.

THE FUTURE
With the generous support of individuals, corporations and foundations the search for the causes and cures of Branchio-oto-renal Syndrome can continue.